Shared Care Protocol
Download shared care protocol here
Responsibility for the care of patients in England receiving Eculizumab / Ravulizumab is shared between the National aHUS service and the referring consultant. The responsibilities of each are outlined in the shared care protocol. All clinicians must agree to the shared care protocol before eculizumab can be authorised by NHS England.
Download forms for STEC testing here – (England) / (Scotland)
Testing for STEC-HUS can be performed by The UK Health Security Agency Gastrointestinal bacteria reference unit (GBRU) Colindale. For patients in England, this can now be requested via the NRCTC using the form above. Simply follow the sampling instructions and send to Colindale. STEC testing is funded for patients in England and paid for by NHS England as part of the diagnostic and follow-up pathways in patients referred to the National aHUS service for consideration of Eculizumab or Ravulizumab. Similar testing where indicated should be considered for all patients where haemolytic uraemic syndrome is suspected. Screening of household members may also be indicated. For patients in Scotland, samples should be sent to the Scottish E.coli O157 / STEC Reference Laboratory Edinburgh.
In addition, it is appropriate to notify the local health protection team cases of suspected STEC – a diagnosis of HUS without positive microbiological confirmation is sufficient to warrant notification. To notify – in England – Find your local health protection team in England – GOV.UK (www.gov.uk)