Useful Links

Useful aHUS Links

For patients

http://ahusuk.org/

https://www.kidneyresearchuk.org/support-us/answers-for-ahus

http://www.ahusallianceaction.org/

 

For clinicians

http://rarerenal.org/clinician-information/atypical-haemolytic-uraemic-syndrome-ahus-clinician-information/

 

Useful C3G Links

For patients

http://www.mpgnddd.org.uk/

http://rarerenal.org/patient-information/mpgn-ddd-c3-glomerulopathy-patient-information/

 

For clinicians

http://rarerenal.org/clinician-information/mpgn-ddd-c3-glomerulopathy-clinician-information/

 

Useful Links for all Patients

http://www.britishkidney-pa.co.uk/

http://www.kidney.org.uk/

http://www.kidneykids.org.uk/

http://www.kidskidneyresearch.org/

http://www.kidneyresearchuk.org/

 

NHS sites

https://www.nice.org.uk/guidance/hst1

https://www.england.nhs.uk/publication/atypical-haemolytic-uraemic-syndrome/

https://www.england.nhs.uk/wp-content/uploads/2017/02/clin-comms-policy-16054p.pdf

https://www.genomicsengland.co.uk/the-100000-genomes-project/

http://www.blueteq.com/commhc

http://www.newcastle-hospitals.org.uk/

https://www.patientview.org/#/

http://rarerenal.org/radar-registry/

 

The Staff at NRCTC

Prof David Kavanagh

http://www.newcastle-hospitals.org.uk/staff-profiles/15812.aspx

 

Prof Neil Sheerin

http://www.ncl.ac.uk/medicalsciences/research/groups/profile/neilsheerin.html#background

 

Dr. Sally Johnson

http://www.newcastle-hospitals.org.uk/staff-profiles/16958.aspx

 

Dr. Edwin Wong

http://www.newcastle-hospitals.org.uk/staff-profiles/22735.aspx