Latest News

News and Events

Please follow us for the latest news and events of the members of the team at the NRCTC.

Coming up soon:

aHUS Patient Roadshow

Agenda attached here

The next aHUS Patient Roadshow will take place on the 30th of June 2018 in Manchester. Consultants and specialist nurses from the National aHUS Service will be in attendance. JOIN US! Invitation attached here!

UK Kidney Week

Our consultants at the NRCTC will be attending UK Kidney Week 2018, the flagship meeting for professionals involved in kidney disease in the United Kingdom. They will be providing an overview of the role of the National aHUS Service. Details of the UK Kidney Week meeting can be found here.

Newcastle Bridges Walk

Members of the NRCTC clinical and research teams will be attending the Newcastle Bridges Walk. This is an annual walk to help raise money for Kidney Research UK. We hope that you can join us on Sunday 10th June 2018 at the Baltic Centre. For more details and to sign up at https://www.kidneyresearchuk.org/get-involved/events/newcastlebridgeswalk

Pint of Science

Dr. Wong will be speaking at ‘Pint of Science’ in Newcastle City Centre on the 16th May 2018. He will describe the science that has led to the availability of the treatment, Eculizumab for patients with aHUS. To register, click here.

 

Public and Patient Interaction

The NRCTC actively engages with the public and patients throughout the year.

We recently held our first aHUS Patient Roadshow in Durham on the 10th March 2018.  A copy of the agenda can be viewed here.

Following the success of this meeting, we can now announce that the second aHUS Patient Roadshow will take place in Manchester on the 30th June 2018.

Information is available from our aHUS nurses on ahus.nurses@nhs.net or from the flyer attached here!

 

 

Newsletters

The NRCTC shares its news with patients and the public in regular newsletters.

The latest newsletter was published in May 2018 and can be found here. The highlights include: New twitter account, Durham roadshow and the next Roadshow

 Please find copies of the latest and previous newsletters below. If you are a patient and are not receiving updates, please contact the team on atypical.hus@nhs.net.

February 2018

November 2017

October 2017

August 2017

May 2017

Feb 2017

 

Annual Report

The NRCTC report the activity of the National aHUS Service to NHS England on an annual basis. A meeting with NHS England was held in December 2017 to discuss the activity of the first year of the fully commissioned National aHUS service. The meeting discussed the activity of the National aHUS Service since the date it was fully commissioned in June 2016. The first reporting period was from June 2016 until March 2017. A copy of the 2016/17 report can be found here.